redwatchforautism

Our journey through life with Asperger's

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Fish Tanks – Negatively Positive or Positively Negative?

Posted by redwatchforautism on October 1, 2011
Posted in: Round Peg Square Hole. Tagged: aspergers, fish tanks. Leave a Comment

Josh has 4 passions that pretty much everything we do focuses around…

First and foremost are Crocodiles – since he was tiny he’s love them, our house is full of them!

Second is surfing – it’s core to his existance and has enabled us to keep him off medication!

Third are modern combat aircraft – helicopters and jets in particular and is fueled by an insatiable desire to build models; and finally

His salt water fish tanks – we have 3, one in the living room, and 2 in his bedroom, through the fish tanks we’ve learnt about life, death, patience and the delicate balance of the natural world.

Most days I wonder given the amazing joy the tanks bring and the depths of the lows that the losses bring, whether the tanks are the most negative positive that we have for Josh or the most positive negative… confused? me too!

So here’s a story that’s been a typical week for nearly 2 years now…

We’ve become the local aquarium shop’s most frequent and loyal customers, its only taken 2 years and Josh is now somewhat comfortable to interact with Steve the shop owner… He’ll jump out of the car when we get there and run in without us…

Our week has to be shaped up around visiting Steve’s to check out what sort of new fish he has, it starts Monday morning, “when can we go to Steve’s this week?”, “can we go on Saturday?”, “are you sure we can go on Saturday?” and so it goes throughout the week… It’s kinda cool actually, there are way worse things we could do than visit the fish shop and check out the new arrivals each week…

Of course in between visits to Steve’s, Josh trawls the internet and reads his fish books (fish and airplane books are the only books he’ll read)  looking for cool fish and is amply armed with questions for Steve at the fish shop on our next visit!

This week, Steve had a small purple fish in his tank that Josh fell instantly in love with… it was small and had been picked on by other fish and Steve offered for Josh to be able to take it home…

I was at work so found out in an over excited phone call (I get a heap of those about the fish tanks) that we had a new addition to the tank today.  Josh was so excited to have a new fish in his tank.

It was going into the third tank… the smallest and least established…  it wasn’t long before some of the high was coming off the new addition and the questions were turning to, “will he be OK in there Dad?”, “is the water OK Dad?”, “can you check on him Dad?” and this just goes on and on…

Unfortunately, “lucky” as he had been named because he survived being picked on by other fish and got to come to our house, didn’t survive the night, and was floating behind the filter when we checked the tanks this morning…

You could see Josh’s little face turn down a little, he’s come to accept that fish don’t always survive, but I don’t think that makes it any easier for him, he won’t cry, he deals with it in his own way… a little later he came up to us and simply said “I’m a bit sad about lucky”… and walked off and got on with his day…

About an hour later we were back at Steve’s for our weekly visit to the fish shop, and Josh racing from one tank to another checking out all the new additions and trying to convince us that we should get a bigger 6ft tank so that he could get “blind shark”… “not today mate, it’s hard enough to look after little tanks! and anyway a shark would eat all your other fish!”

“oh yeah”, he replies and is back to checking out what the next addition will be…  It looks like the smallest tank is going to be turned back to freshwater and we’re getting a bright blue crayfish…

And so our adventures with fish tanks continue, for a little boy with Asperger’s, they have been such a positive thing, he’s learnt so very much, yet with the ups come the downs and the stress and anquish they cause worry us too, but there is no way we’re getting rid of them… maybe, just maybe there is a future for him in the aquarium industry?

Stay tuned for more of the amazing adventures we have with our fish tanks!

A Round Peg trying to Fit a Square Hole

Posted by redwatchforautism on September 28, 2011
Posted in: Round Peg Square Hole. Leave a Comment

Life with a child with Asperger’s is like constantly trying to fit a round peg into a square hole, when there is nothing wrong with the peg being round and no reason for the hole to be square!

25 September 2011 – Coolangatta Beach, QLD, Australia

Today was round 1 of the Great Australian Swim Series, a series of ocean swims held up and down the East Coast of Australia.

Josh, Ben and I are all entered, Josh in the 150m special needs category, Ben for the first time in the 750m category and me do the 2.2 km swim.  The wind is howling and onshore, whipping the ocean into a chopped up frenzy…

Josh has agreed to enter the event, because it has a special needs category that means he doesn’t need to get caught up in all the competitive hype that goes on between the square pegs on the beach…  he can do what he just loves to do – swim in the ocean, no competition, no pressure, no need for our little round peg to interact with all the square pegs, they just don’t make sense to him…  Of course though when we get there he doesn’t want to swim the 150m swim, he wants to do the 300m… so its of to find the organisers and get him into the 300!

We’re over the moon that he wants to have a go and is willing to participate in the event, and the event is willing to recognise kids like Josh and have a category for them… he even gets his own elite swimmer to swim with…

He makes his way to the start line, standing just behind all the square pegs, not really looking at anybody, not really talking to anybody and shuffling side to side – you can tell he’s not comfortable…

The hooter goes and they’re off, he races towards the water and dives in, he looks kinda funny with his long hair sticking out under the bottom of his cap, and then he’s lost in the waves with all the other kids, a small mass of thrashing arms and flailing legs…

About 5 and 1/2 minutes later the first kids are back to the beach… Josh is not far away now, we can pick him by the hair sticking out from under his cap and his elite buddy swimming next to him…

Josh manages to come in about 5th over all having made his way right through the melay having started behind them all…  He was so stoked with his effort, he really enjoyed himself, third boy first in his special needs category!

Ben’s race was up next and he boldly took to the line to compete in his 750m race…  all the while the wind has been getting stronger, whipping the ocean into even more of a frenzy… and then they were off, Ben racing towards the waves and on his way in his race…

About 10 minutes later Benny is heading back in… and wait, is that really Ben? he’s in first place… the race has Olympic swimmers in it… could he really be in first place?  he ran valiantly to the finishing line, and then kept going, and going… when I caught him he was so upset, he thought he had been last and was really embarassed, then realised he was first and was even more embarassed thinking the everyone on the beach had thought he had cheated!  The poor little bugger had got lost and hadn’t known which way to go, so he came in (which was the right thing to do!)… he was OK about an hour later!

We stuck around for the presentation, but unfortunately in the wrap up of the event they missed calling Josh out, the poor little bugger had no idea why they would not have called him out, didn’t he come third? why did they call everyone else?  It wasn’t that he wanted a prize, he simply couldn’t understand why he hadn’t been called out!

We followed up with the organisers to that evening and to their extreme credit (thanks guys) they included Josh in the e-mail sending out the results and were seriously sorry – which we really appreciated!

What a great day we had… good on you boys for having a go and thanks to the Body Science Great Australian Swim Series for having a crack at making the race accessible to round pegs like Josh, who just want to  have a go!

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Congratulations!
Congratulations to everyone who took part in the Body Science Great Australian Swim – Round 1 Great Gold Coast Swimyesterday at Coolangatta.  The sun was shining and the wind was up, creating some challenging conditions for swimmers battling it out around the course.
Trent Grimsey once again took out the 2.2km Elite Men’s division with George O’Brien and Jordon Harrison hot on his tail, while Cara Baker from Varsity Lakes won the Elite Women’s division.  A special mention goes to Josh Manning who competed in and won the Special Needs 300m event. Thanks also to Jetstar Gold Coast Titans Will Zillman and Jordan Rankin for joining in the fun and swimming with the Junior Kids and then in the Ky Hurst 750m Swim.
Congratulations to all our winners and competitors for taking the plunge in the Great Gold Coast Swim!
Results for all races are now available online.  See how you went here!
SportsPix.com.au was on the beach taking pix throughout the day.  You can view your Body Science Great Australian Swim Series race images on their website, so check it out!
Body Science are offering 25% off their official BSc Compression and Nutrition range to all competitors so take advantage of this great offer now!
Don’t forget our next two swims in the Series are in November
Rd 2: Hamilton Island
Great Whitehaven Swim – Sunday November 20
Rd 3: Suttons Beach, Redcliffe
Great Brisbane Swim – Sunday November 27

Start planning now for the Final in the series in Sydney and make it an Australian Day long weekend!


Final: Sydney Harbour, Opera House
Great Sydney Swim – Thursday January 26
 

Entries are open now for all three events at bodysciencegreataustralianswimseries.com.au

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Welcome to Redwatch for Autism…

Posted by redwatchforautism on September 25, 2011
Posted in: Uncategorized. Tagged: asd, aspergers, autism, autism spectrum disorder. Leave a Comment
I'm Paul, I'm married to an awesome girl and have two fantastic boys, Josh our eldest (he's 14) has Asperger's, an Autism Spectrum Disorder...

These days I wear a Red Watch...

Why? My Red Watch reminds me to keep moving forward, to face the challenges that everyday brings head on, to keep my chin up, to never let it get me down...

Redwatch For Autism is my blog to throw my voice in the chorus of people shouting out to make the world aware of kids who just don't fit this world...

Why Red Watch... because if I don't shout out for Josh, for the impact that Autism has on his brother and our family, then who will?

All I hope for out of this is that the world may take on a small appreciation for the challenges faced by families with kids who sit somewhere on the Autism Spectrum...

Thanks for reading, you're invited to follow along, I hope you take some inspiration and maybe help someone who just doesn't quite fit...

Cheers,
Paul

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